Comments on: Alex's Story

By: Jason

Jason — Thu, 06 Jan 2011 11:08:32 +0000

My prayers go out for them. Everyone who has it gets it so on. Its a very sad thing. If i had money i would. I can barley survive right now. But as soon as i am able to get a job i would love to help out with this! And any others. Is there any website also people can donate to?Is it just yalls im guessing the link you put on must be it!

By: Heather

Heather — Thu, 28 Oct 2010 00:53:02 +0000

Hi there, I found out about Alex’s story through my aunt who watches your show all the time. It is so horrible with what is happening to you. I have been sick for about 9 months and recently got diagnosed with MS (multiple sclerosis). My case is mild compared to others but not to me. I feel sick to my stomach and dizzy all the time and very fatigued. I recently started taking some medication for the nausea and steroids in the begininng to reduce the swelling of the legions in my brain. I will be going to a neurologist hopefully soon to get the medicine i need to live a good and healthy happy life. Even though your situation and my situation is horrible, thank you so much for sharing. It is nice to know that there are people in the world that understand what you are going through in a physical sense and not just emotionally. if you need to talk or if anyone going through this, my email is hrowan85@yahoo.com. My aunt and I will be praying for you and everyone else as well. thanks again

By: vincent loh

vincent loh — Tue, 26 Oct 2010 21:58:35 +0000

hi..i m inspired by alex story…n would like to know her story more..coz m thinking abt writing a book abt her..anyone know how can i contact her??anything as simple facebook acc will do..thanks

By: links

links — Tue, 13 Jul 2010 02:48:36 +0000

Awesome Post…

Saw this great post And just had to link back to it…

By: Melinda

Melinda — Mon, 12 Apr 2010 22:22:20 +0000

Dear Phil & Robin
I am 38 and diagnosed w/ idiopathic Torsion dystonia Last year. It is a progressive & dibiliatating neuorlogical movement disorder. I feel deeply for Alex and can definitley relate. One thing that bothered me about the show was the lack of informing her & the viewer’s of the possible side effects and dangers of (DBS). After all they are drilling holes in your head and messing with the brain. There are risk and the Dr.s made it sound like a cure and she would go back to the way she was before. When in fact they do not know that. I hope & pray she does. In some cases this has happened, some may have 50% improvement. But some have not. (DBS) is not a cure for dystonia There is no cure only medicines to help relieve symptoms. Even people w/ dystonia who have (DBS) and it has helped them if the battery dies or goes off unexpectedly their dystonia would act up again. I’m not trying to be negative. But the risks need to be addressed as well as the positives of the surgery. People who did watch the show who I know are like hey there’s a cure can you get the (DBS) surgery? It’s just not that simple. And even though I can’t drive, I can use cane for short distances my left foot is turned in and i drag my right leg. Have to use wheelchair for stores & such I am waiting for electric wheel chair. Because my arms & hands are affected as well. I have lack of cordination. I was extremely active person with a wonderful job, married for 20 yrs to a wonderful husband with 2 great children.I would not be wiling to take the risk of (DBS) at this time. I have a wonderful movement neurologist who has helped me with meds. and I get botox injections in left leg & arm every 3 months. My left foot is starting to improve and i don’t believe i would be able to use my left arm if it wasn’t for the botox. I too like many other people with dystonia went through cruel and awful experiences with dr’s before finding the right one. It amazes and saddens me the lack of Dr.s and people who have never even heard of dystonia. How can something so devastating be such a secret? I can’t work anymore but I have to do something. March 14 was my 1 yr w/ dystonia. I had to come to terms that the life i lived before was gone. Being diagnosed helped me move on. I am still the same person (I am now on a new path) I am getting involved w/ dystonia research foundation to bring awareness to dystonia. My old job does a wellness fair and they will let me set up a booth to bring awareness to dystonia. Plus it will help keep me conected w/ the many people I worked w/ for 11 yrs. (my second family) I am very slow but i am making recycled crafts to sell for dystonia research. Dystonia has taught me how much we take for granted. How kind & giving friends family, community & strangers can be. My hubby & I were overwhelmed by a benefit dinner our small town restaurant w/ help from family & local businesses donating things to raffle. My co-workers help. I got sick 3/14/09 my hubby lost job 7/13/09. The help of family friends, co-workers helped raise enough money for us to pay cobra insurance for months. People adopted our family for christmas people brought food & gifts. It was truly overwhelming. (It is much easier to give! Than to recieve). We pay it forward in small ways. But every little thing counts. Thank You Obahma! we would have never been able to pay cobra for insurance if he didn’t do the 35% subsidy. And we are also greatful that he extended it for 6 months. Wow! sorry to go on & on. I will continue to stay positive as long as I have my family, friends and a purpose. I am thinking positive and praying Alex will dance again.

By: jennifer b

jennifer b — Wed, 09 Dec 2009 03:56:30 +0000

Im so glad that yall have helped as many people as yall can! I was crying on her story. I saw it! And so glad montel was there to help her to!! He is a wonderful man to! Thank god for yall you, robin, montel!

By: connie

connie — Tue, 20 Oct 2009 22:37:35 +0000

Dr Phil I read Alexs story and it is sad that some of us suffer so much I have fibromyalgia and I am in pain alot I dont know the dease she has but i know it must be bad connie in wv

phil

By: jeannie s. weaver

jeannie s. weaver — Tue, 20 Oct 2009 22:21:45 +0000

dear Dr.Phil, i try to watch your show as much as i can. i really can understand Alex’s emotional trouble. i was dianosed in 1999 with deterorating disc disease. at the time i was a single mother with a good income coming in. well i had back surgery in 2000, they said i would be 100% better after the surgery. well needless to say it was alot worse. i couldn’t go back to work, and i had to ask for social services help, which wasn’t much. i finally got disability but by then i felt like i was worthless, helpless(in some things) like i was trapped. i couldn’t do much house work or anything. well then they dianosed with bipolar and fibro. well i still couldn’t do much. i feel worthless when my second child(8yrs old) needs to go to the library or somewhere else and i can”t take him. i do have a husband now of 7yrs but he doesn’t understand. i went into a psy unit last year, i stayed 5 days. at the time i was forgetting everything just on a down hill . i wanted to kill myself if it wasn’t for my children and my beleif in God i probably would had followed through with it. for example about forgetting my husband told me i made him drive me to some yard sales, with his anckle broken, he said i made him stop at 2 yard sales, he said i spent about $150.00 between the 2.ha/ha. i went to my mother-n-laws for easter. a week later i asked him what we done for easter. my daughter was there with her boyfriend, and i didn’t remember any of it. thats why i asked for help. the fatigue was so bad and still is i have trouble just getting out of bed. some days i stay in bed allday and allnight. but the worset problem is my husband thinks you can get up and get over it. way harder than that. i just wish that all the pain was gone and emotionally like i used to be happy and out going. i’m now 38 and the dr.s just give me medicine for the pain and bipolar,insomnia when i can’t sleep and acid reflux meds. which none of them work, the slightist thing i do causes pain. my pain speciailist even said there is nothing else they can do for me except pills. which im imune to it all. this is the first time i sat down and told anyone other than dr.s. some of your shows really hit home. i thank god for you and your wife for opening comunication and being honest. so thanx for lending an ear. sincerly, Jeannie in Patrick Springs, VA

By: Candie Sterry

Candie Sterry — Tue, 20 Oct 2009 18:51:36 +0000

Dear Dr Phil,I was in a car wreck Nov 18th 2007.They lost me a few time and when I stopped breathing they put me on the life support machines and put a breathing tub in my chest.I was in the passenger seat asleep and the lady driving was going down the interstate about 80-85mph.She hit the back end of a camper and the SUV that we was in started flipping,and it flipped about 8 times”one of my witness said” then it stopped flipping and then it started sliding down the interstate on the top of the SUV and I was sliding down the road on my head! I have a very bad and big bald spot on my head where hair will never grow back because it took the roots off my head when I was sliding down the road!I had to have 2 surgeries on my right elbow,2on my right shoulder and lots of Physical Thrpy to teach me how to walk,talk,eat,and even give myself a bath again.I would just like to speak about this to young people that think they can talk on the phone,or tex on the phone and drive! That’s what my driver “Christine” was doing when she almost killed me for good! Thanks Dr Phil and Robbin for being such a great part of my life! May God Bless you both and you are always in my Prayers! I sing in the Choir @ Church,so if your ever in Tennessee,close to Murfreesboro call me and maybe you both can come to Church with me on a Sunday morning! I go to the River of Life on Sam Ridley Parkway in Smyrna Tn. 615-753-3637 Love you,and God Bless you everyday! Your favorite fan,Candie Sterry

By: Kristin

Kristin — Tue, 20 Oct 2009 02:47:29 +0000

Please help us! Just a reach out so I know you are getting this would help. My husband beats up on me everyday and last night was no different. I want to see my children grow up and have children of there own. I know if I have to stay here that will not happen. I do have some faith but it is going away. I have been in one bad relationship after another but this relationship is different I married him and his children. I cant call the police he takes the phone and when ihave gotten to the phone and called I got beat up after they left because I imbarrssed him. My children deserve better. I derseve better. Please contact me threw email or phone. Please